Retinoblastoma, the most prevalent malignant eye cancer among children, has a high incidence in the Philippines with a rate of 17.8 per million children aged 0 to 4 years. Given the country’s population of 92 million, of which 10 to 13% are children under the age of four, an estimated 210 cases are expected annually. Retinoblastoma is highly treatable when detected early. However, the majority of Filipino cases present late, often with extra-ocular extension. This delay in diagnosis can be attributed to various factors, including financial constraints, limited access to healthcare and misdiagnosis. At the Southern Philippines Medical Center (SPMC), the tertiary referral centre for Mindanao, 93% of patients present with extra-ocular disease, resulting in a survival rate of less than 20%. The number of children diagnosed annually at SPMC is significantly lower than the expected 35 to 40 cases for the island.
In 2011, KTP-NUCMI funded a programme for the early detection of retinoblastoma in Davao city and other major cities on Mindanao Island. This collaborative effort involved the SPMC, led by Dr. Mae Dolendo, and NUH, in partnership with Dana Farber Children's Hospital Cancer Center and St. Jude Children's Research Hospital. The programme’s key elements included raising awareness of early warning signs, establishing a referral system and developing a multidisciplinary team at the SPMC.
Specific initiatives encompassed distributing educational materials such as posters and pamphlets on retinoblastoma in local health centres and conducting symposiums for barangay health workers (BHW), general medical practitioners, paediatricians and ophthalmologists. The campaign covered Davao City, Tagum, General Santos City, Zamboanga City and Cagayan de Oro. To position the SPMC as a centre of excellence in retinoblastoma care, monthly online multidisciplinary tumour board meetings with the NUH team and world-renowned experts, Dr. Carlos Rodriguez-Galindo and Dr. Matthew Wilson, are held to discuss case management. A retinoblastoma protocol and treatment plan were developed for SPMC, alongside a comprehensive database for monitoring care. Second opinions on pathology specimens and CT scans are provided by NUH. In 2012, a dedicated retinoblastoma centre was inaugurated at the SPMC.
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The first outreach to AHC began on 14 June 2012, focusing on practical and interactive learning, and continued monthly until November 2012. Each visit concluded with assessments and revisions, while NUH consultants prepared detailed reports to guide subsequent visits.
Dr Claudia Turner, a research paediatrician at the AHC and who had experiences in providing neonatal care in the refugee camps along the Myanmar-Thai border was invited to join the programme; she provided continuity in teaching from January 2013 in the form of bi-weekly ward rounds and weekly formal teaching.
A separate premise for the Neonatal ICU was identified. We provided expertise in design and equipment considerations. The neonatal ICU was inaugurated in September 2013, within 15 months of our first visit.
The second phase of training started in October 2013, involving monthly visits by our consultants for 6 months. It focused on bedside teaching, ICU management and independent practice, with continued support into the following year.
This program has significantly enhance neonatal practice at AHC, with a core group of doctors and nurses emerging as leaders. Two members of this group visited the NUH Department of Neonatology in December 2012 for advanced training.
